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Event
Mitzvah's at Mizner Park: A Charity Evening & Entertainment
Come Join Us for an Evening of Fun, Entertainment and Laughter as You participate in your annual mitzvah. This event commemorates our 1 year mark and this Event will BE THE Official Public Launch of our Foundation!
Because this is such a special occasion, the evening will be filled with food, spirits, live entertainment and the documentary premier of "Living to Be Funny" which is a documentary film and true story about the Comedian Jay Risk who lives with Tetralogy of Fallot and literally lives to be funny. During his real life journey (His every day life), he finds himself through helping others!
This charity event benefits the 'Tetralogy of Fallot Foundation, Inc.' which is a 501(c)(3) Non-Profit Foundation (State & Federally Tax Exempt) which Over 100% of all donations went to helping last year (Over meaning, Jay Risk and his wife Stefanie give what they have, investing in helping others, expecting nothing in return...They have not made a living off of this foundation!) Last year, the total amount used combined by both Jay and his wife Stefanie was $400.00! 100% of ALL OF YOUR DONATIONS AND PROCEEDS GO DIRECTLY TO HELPING OTHERS THROUGH THIS FOUNDATION. THE FOUNDATION WILL USE 100% OF ALL PROCEEDS RAISED DURING THIS CHARITY EVENT! 100% AND YOU WILL BE UPDATED ON WHAT THE MONEY WAS USED FOR THIS YEAR WHILE HELPING OTHERS!
We have our license to accept donations and 100% of your donations are completely tax deductible!
ABOUT:
Tetralogy of Fallot is a four part congenital heart defect that affects more than 20,000 newborn babies per year! Thankfully science caught up and now those who are affected, for the most part, are living! Sadly, it is normal for a TOF patient to endure 3-7 open heart surgeries just to live throughout their life but...53% of TOF patients die just trying to transition from being a child to becoming an adult due to medical complications and the severe shortage of specialty Doctors. There are less than 500 Adult Congenital Cardiologists in the World and this foundation works tirelessly to grow the Adult Congenital fields of medicine.
In 2016 our Foundation made a prominent display at Florida's Largest International Cardiology Conference "Cardiology Conference 2016 Orlando" themed "Clinical and Experimental Cardiology". The conference is both CPD and EMA accredited and in partnership with the Arrhythmia Alliance.
Our National Spokesman, Jay Risk was CHOSEN to be the OFFICIAL Moderator of the 3 day conference along with being accepted to give a special speaking session on "Long Term Effects and the Congenital Gap" which the clinical abstract is published in over 12 referenced, indexed medical journals and the full research is about to be revealed and submitted for publication by the end of this year at the "World Cardiology Congress" in Rome, Italy on...Once again, "Clinical & Experimental Cardiology"!
Since opening this foundation, our achievements have been viewed as outstanding and proudly, we now give this condition an international governing body, a voice, a place to start and advocates which specifically focus on Tetralogy of Fallot...Not just an all encompassing congenital heart defect association which *CONTINUALLY* puts our needs to the wayside. In 2012 the fields of "Adult Congenital Medicine" were born and yet, the growth has been little to none.
Research has shown, bypassing the proper continuing education of General Cardiologists or the teaming up of Pediatric and General Cardiologists only help a fraction of what would actually be considered safe by the medical community, yet, they allow this to go on because they are "Short handed". This will be no longer. We are here to help patients, raise awareness, push for continuing education, medical research, medical mandates, operational protocols and an intense focus is being put on the engineering of better heart valves and expediting the process so less patients die, have serious complications or have to endure many more open heart surgeries than necessary.
FURTHER READING:
Those living with or affected by TOF, now have a place to specifically reach out for help. Without our foundation, the patients and the condition keep being pushed to the wayside by large institutions in terms of funding, raising condition awareness, medical training, continuing education & staffing yet, those same institutions that have yet to "Do the leg work", self report as if they can *properly* treat TOF patients, and the same majority who self report, are Dr.'s or are using Dr.s without enough experience or medical training to treat a TOF patient - Which makes the majority of a TOF patient's treatment high risk, specifically when an aging patient is transitioning from pediatric to adult cardiology...And if you are a pediatric patient with TOF, you need to be seen by a specialty Dr. or hospital...Adult Congenital Care is what we are currently focusing on growing so patients have more than a 47% chance at living to be the age of an adult.
There is little awareness for our condition, we need to grow the fields of "Adult Congenital Medicine" (Specifically Cardiology), and work to improve better heart valves (Which we are intentionally flying internationally to do so), so patients no longer have to endure the reality of having 3-7 open heart surgeries if they wish to live a full life and not have a diminished lifespan.
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LocationMizner Park Cultural Arts Centre (between Yard House and Jazziz Nightilife) (View)
201 Plaza Real
Boca Raton, FL 33432
United States
Categories
| Minimum Age: 16 |
| Kid Friendly: Yes! |
| Dog Friendly: No |
| Non-Smoking: Yes! |
| Wheelchair Accessible: Yes! |
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